To the Pediatrician that was in My Corner

Posted in DYRK1A by

Thank you.

I know I can’t say thank you enough, but thank you.

You were there for us during our darkest of days. Advocating for us. Cheering for us.

From day one, you have always been there for us.

Doctors take a vow to take care of their patients, but you went above and beyond that promise. You ensured that our son Jaxson got all of the help that he needed.

You had us come in two days after being discharged to ensure that he was doing okay, you wanted to make sure that he was eating enough. I’m so glad that you did. I wasn’t aware at that time that he couldn’t suck and swallow well at all, and he lost a whole pound.

You had us come in weekly for weight checks, and scolded the corpsman when they didn’t weigh him without his diaper – children at that age needed to be weighed without a diaper, every ounce counts.

We were admitted to the Children’s Hospital out in town because of you – you were adamant that they admit us and find out why Jaxson wasn’t thriving.

We continued to have weekly weight checks until Jaxson was about five or six months old – when he really started thriving. Some may think it was excessive, but you did everything in your power to make sure that our warrior had a fighting chance.

You were the one who dotted his I’s and crossed his T’s, you sent us out for every referral imaginable: Ear, Nose, and Throat, Physical Therapy, Feeding Therapy, Occupational Therapy, Genetics, Pulmonary, Gastroenterology, Sleep Specialist, and more.

You were even the one who diagnosed our son with Laryngomalacia, a Pediatrician not an E.N.T. Specialist. I was able to find support with the Laryngomalacia community before finally receiving the official diagnosis from the Specialist.

I thank you for that, it gave me answers and a peace of mind – peace of mind that I wasn’t crazy.

With your diligence Jaxson started to roll, he started to crawl, he started to thrive

Boy did he start to thrive.

Your persistence also found us his Diagnosis: Dyrk1a Syndrome. Some had to wait years and years, but with your tenacity, we found it much sooner than that. Now we can continue to get all of the help our warrior needs to be all he can be in this world.

Fast forward to today, we are now in North Carolina with a new team of doctors and I hope that they will have the same drive and compassion as you. I can’t thank you enough for all of your help, your due diligence, and your hope for us.

I will never forget your kindness and determination.

Thank you, thank you so much.

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Thank you to our Pediatrician #Dyrk1a #Awareness #Kindness #Letter

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  • Reply Emma | Muddy Boots and Diamonds

    I love this! I keep meaning to write a similar post to the pediatrician who really took the time to listen to my concerns about my son’s developmental delays. So many people dismissed my concerns — doctors and family alike. She helped pave the way for me to get him the services I knew he needed. <3

    February 12, 2019 at 10:39 am
    • Reply Jennifer

      Hello Emma,
      Thank you for so much for commenting and sharing your story. If you do end up writing it please let me know! I would love to read it. <3

      February 15, 2019 at 6:45 pm
  • Reply Sheila

    It’s so important to have those people who will go to bat for us. Who are strong for us so we can pause and be weak for just one moment. I’m glad you had some people that that. #KCACOLS

    February 18, 2019 at 2:08 am
  • Reply Lisa Pomerantz

    It sounds like you were all in very good hands from the get-go. May it always stay that way. Sending love and healing light your way! xoxo #KCACOLS xoxo

    February 20, 2019 at 3:07 pm
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